CV Science

Emmanuelle Rial-Sebbag PhD Health Law

Course and current status

Emmanuelle Rial-Sebbag- Lawyer-, Graduate in health law (Faculty Bordeaux), Ph.D in Health Law (University Paul Sabatier Toulouse). She is Director of Research (Inserm) in health law and bioethics. She is the leader of a multidisciplinary team, “BIOETHICS” (BIOethics Exploring Trajectctories of Health Innovations Challenging Society) at the Inserm/Paul Sabatier University 1295 Unit in Toulouse (Center For Research Epidemiology in Population Health, CERPOP). She is an Associate lecturer in bio-law and bioethics at the University of Medicine in Toulouse (Purpan). She is developing research activities on the Governance of Research in biotechnology and the role played by regulations at national and European level (Genetics, genetic testing, biobanks, health data…). She is the leader of the first UNESCO Chair “Ethics, Science and Society” (2018-) granted to the Federal University of Toulouse, aiming at studying the challenges raised by innovations in several cultural contexts including Africa and China.

Scientific summary

Academic Achievements.

Dr Emmanuelle Rial-Sebbag is involved in several research projects at National, European and International level, on the bioethical challenges raised by innovations in health (biobanks, innovative therapies, biomedical research involving human beings, genetic testing, health data protection). She has conducted several multidisciplinary research regarding new practices in genetics (oncogenetics in adults, oncognenetics in minors) crossing legal and sociological analyses. She is responsible for several teaching and educational sessions especially on the ethical and legal aspects of biomedical research involving human or patients’ rights regarding genetics testing, biobank and data protection. She is and has been part of several Ethics boards, shes is member of the regional ethics committee for research. She is a member of the “The Public and Professional Policy Committee” (PPPC) of the European Society of Human Genetics. She was the coordinator of the EUCelLEX project (FP7 2013-2016, Cell-based regenerative medicine new challenges for EU legislation and governance, GA 601806.